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Hi Everyone, I'm new and have become a stuntwoman. Options
rivermum
#1 Posted : Tuesday, August 30, 2011 4:24:10 PM Quote
Rank: Newbie


Groups: Registered

Joined: 8/28/2011
Posts: 8
Hi everyone!

I'm Sue and I'm new here. I'm a 41 year old mother of 4 from Essex. I was diagnosed with RA by a fab rheumy at Southend Hospital two weeks ago, after a few years of pain and swelling in my knees that was so bad I couldn't wear my skinny jeans. It eventually spread to my hands; in the past 4 months I have broken 12 wine glasses and dropped the iron on me (my husband has insisted I get an ironing lady now....YES!!!).

I have had 6 months of being told by various doctors I have OA, gout, I "ski too much" and should stop wearing such ridiculous heels (although how my heels affect my hands is still a mystery). I only have one kidney, the other was taken out when I was 19 and about to start medical school. It was only when I mentioned to the Ortho at the hospital that 8 nurofen a day wouldn't get rid of the pain, and would also poison my kidney, that he sat up and decided to refer me. I was alos crying at the tie as I had fallen down the stairs for the 4th time that week, and actually tumbled at one point (hence the stunt woman).

I had my first dose of methotrexate 15mg, yesterday and felt a bit rubbish: nausea, tiredness and a headache. I still have the headache, but that may be to do with the fact that its the 6 weeks holidays still grrrrr.I can't take any nsaids because of my kidney, so rheumy is trying to sort out an exotic cocktail for my pain relief. I'm trying so hard to stay positive and ignore the "My nan gets that when its cold" comments...I put a very stroppy facebook status on yesterday, and today updated it to "God has given me RA because he knows I'm a strong enough b***ch to take it ;)" I got quite a few likes, and interestingly enough lots of people asked me about the condition.

Anyway, than you for your time and I'm looking forward to getting to know you all Smile

Sue x




jenni_b
#2 Posted : Tuesday, August 30, 2011 5:33:36 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hello Sue and Welcome to NRAS

I am Jenni, Im 35, married mum of 3 and I have severe RA Im afraid and failed a boringly long list of drugs.... never mind! Theres lots more to me that crappy RA...

Oooh I bet the drs are all clamouring to meet such an "interesting" patient with one kidney!

I went through a long time before dx too- over a year really, I was told I had a virus for a long time as I felt rough and kept loosing my voice. They tried to treat that at the GP and I mentionned about the stiff hands and shoulders and knees and the toes that did the hitler salute in the night and he said "well, we shall do the voice first shall we?!"

One night the pain in my foot was so bad I had a locum out and he took a blood test and wallop!

My GP on the doorstep following day explaining he was very sorry and its very rare in the young but hes got me an emergency appt at rheumatology....

I was 20 then.

In my last yr of Uni... *sigh* a long time ago! I taught for 9 yrs and have had a family and done lots and lots with life.
I still have buckets to do!

Delighted to meet you,

Jenni

how to be a velvet bulldoser
jenni_b
#3 Posted : Tuesday, August 30, 2011 5:53:52 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hello Sue and Welcome to NRAS

I am Jenni, Im 35, married mum of 3 and I have severe RA Im afraid and failed a boringly long list of drugs.... never mind! Theres lots more to me that crappy RA...

Oooh I bet the drs are all clamouring to meet such an "interesting" patient with one kidney!

I went through a long time before dx too- over a year really, I was told I had a virus for a long time as I felt rough and kept loosing my voice. They tried to treat that at the GP and I mentionned about the stiff hands and shoulders and knees and the toes that did the hitler salute in the night and he said "well, we shall do the voice first shall we?!"

One night the pain in my foot was so bad I had a locum out and he took a blood test and wallop!

My GP on the doorstep following day explaining he was very sorry and its very rare in the young but hes got me an emergency appt at rheumatology....

I was 20 then.

In my last yr of Uni... *sigh* a long time ago! I taught for 9 yrs and have had a family and done lots and lots with life.
I still have buckets to do!

Delighted to meet you,

Jenni

how to be a velvet bulldoser
jenni_b
#4 Posted : Tuesday, August 30, 2011 5:54:50 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
ooooh I must realllly mean it I posted it twice!!!!!!!!Blushing
how to be a velvet bulldoser
Lorna-A
#5 Posted : Tuesday, August 30, 2011 7:40:32 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914

Hi Sue,

I am Lorna, I have had RA for almost 4 years now. Sorry to hear it took so long to get it disgnosed, glad you're on top of it now, it will get easier. Try taking your MTX at night, that way you sleep through the side affects, lots of us do this. I was very ill to start with but I keep really well now. Don't give up hope, the drugs do help lots when they get into your system. Keep posting whether it good or bad news, we are all here to help.

Take care Lorna x Smile
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